Saturday, January 22, 2011

A song comes to mind . . .

But, I can't think of its name. Remember? First you say you will and then you won't; then you say you do and you don't? These vague words are so descriptive of Tom's situation and, for that matter, the words and advice I'm hearing from doctors. We are fortunate with really good, caring doctors, but it's as if they are so focused on their own specialties that don't they know how the whole works together--or not.

For instance, I saw the neurologist this morning and he is not optimistic about much recovery. He sees the Parkinson's, knows how it has progressed in Tom since first meeting him in 2007 and knows from both a professional and a personal view how Parkinson's affects everything else. Before I arrived this morning, the infectious disease doctor came, saw that the white count had started going up again, so ordered a chest x-ray. I didn't know about the white count and was surprised to see the x-ray techs arrive this afternoon. Still later in the afternoon the medical doctor came and was encouraging about the small improvement steps. He spent several minutes telling Tom how important it is for him to eat to get his strength back. Maybe Monday I will talk to the social worker about discharge plans. Maybe I will and maybe I won't.

I won't go into the practically nonexistent care of today. My mother was a nurse and I know how demanding their jobs can be. However, I was not at all satisfied with today's lack of care and concern for Tom! Nuff said.

My treatment began again yesterday or the Avastin part of it did. The insurance company approved my taking the chemo drug in capsule form once a day. I'll begin that regimen when they arrive by mail the middle of next week. Our hope is that I will respond more positively taking small daily doses than an infusion every two weeks. Even after two months off, my red counts are still low. God has provided the energy I've needed these last weeks; it definitely didn't come through a good red count!

I covet your prayers for patience and that I might bear the image of Christ as I interact with all the medical personnel.

Pastor Margaret


johngaudet said...

"Undecided" is the song. Louis Armstrong did it and Ella Fitzgerald too. Sorry to hear of the vague feedback from the doctors and slow bedside care. I'm glad he has such a wonderful family to care for him.

Bubblewench said...

Keeping you in my thoughts and prayers daily.